Effective Care Transitions For Individuals With Alzheimers Disease And Related Dementias
As the number of people with Alzheimers disease and related dementias and associated costs are projected to increase dramatically over the next 30 years, education and training in this area is of great importance. Transitions between home and the acute care or rehabilitation setting can be challenging for people living with ADRD. This workshop will
Why Attend The Caregiver’s Journey Conference
Welcome to the Caregivers Journey Conference.
This year we have the opportunity to host a hybrid version of our Caregiver’s Journey Conference. On May 3rd, 2022 we invite attendees to join us in-person at the Crowne Plaza in Warwick, RI. We will then switch to a virtual track on May 4th, 2022. A special thanks to the Office of Healthy Aging and the many businesses and organizations that continue to sponsor and support our Annual Caregiver’s Journey Conference. We are excited to have as our special guest presenter, Amy Goyer presenting on May 4th, 2022.Amy is AARP’s Family & Caregiving Expert.
Our conference continues to focus on helping personal and professional caregivers develop the understanding and skills necessary to support a person living through the journey of Alzheimer’s and all other dementia.
Alzheimer’s Association Rhode Island Chapter
245 Waterman Street, Suite 306
Providence, RI 02906
Even With Her Parents Gone And Her Own Future Looking Safe From The Disease For Now Saccoccia
The more research we have, the more likely we are to find an effective treatment for this disease, if not a cure, she says. Thats what I want people to know. Its so important to participate in the research, because together I think we can find a solution to this awful problem.
If you’re between the ages of 40 and 85 and have normal memory or mild cognitive impairment, you can help the Memory and Aging Program to make Alzheimer’s history, too. Join the Butler Hospital Alzheimer’s Prevention Registry online today to be matched with current or future research studies for which you may qualify at butler.org/ALZregistry.
Recommended Reading: Who Will Get Alzheimer’s Disease
Idd And Adrd Project Echo
Growing older with intellectual and developmental disabilities: When dementia is suspected or diagnosed This Project ECHO series is a free, practical, case-based education series for health care providers who want to enhance their knowledge, competence, and performance related to improving care for people with intellectual and developmental disabilities affected by dementia. Each virtual meeting will
Early Stage Alzheimers Disease: Assessment And Staging
There are over 5 million Americans with Alzheimers disease today and this is estimated to increase to up to 16 million by 2050. As both the number of people with Alzheimers disease and associated costs are projected to increase dramatically over the next 30 years, education and training in this area is of great importance.
Recommended Reading: What To Know About Alzheimer Disease
Caregivers Of Alzheimers And Patients With Related Disorders
Caring for a person with Alzheimers can be highly demanding, often affecting the financial, physical, and emotional well-being of the caregiver. Caregivers often assist with a wide range of responsibilities including:
- Assisting with activities of daily living
- Managing physical and behavioral symptoms
- Identifying support services
- Paying for services
- Providing comprehensive care to ensure
Given the challenges and stressors of caregiving, it can be helpful to develop a work/life balance, a strong support network, and coping strategies that work for you and the patient. Resources and support are available and can help you better manage your own physical and mental health while handling a wide range of tasks.
Ive Spent A Lot Of Time As A Caregiver Saccoccia
Mom was 67 when she was diagnosed back in 1994. My daughter was born in 1997. Mom had the disease for 10 years before she passed in 2003, just a couple months before she and my fathers 50th anniversary. Dad had a really hard time when she passed away. I had to make all the arrangements, because he had difficulty coping with it. I was the do-er in the family, I guess, she says with a sad laugh.
About a decade later, Saccoccia-Olson would have to weather the same storm all over again, this time with her father.
Dad was very different. He worked until he was 84 and wasnt diagnosed until he was 87. He died last summer at 91. So it happened much later and faster for him, she recalls. When I saw him initially decline I was thinking, Oh, I dont know if I can do this again and I knew he would be difficult because hed always been a tough and independent person. He would get angry with me sometimes because he would forget something and I would remind him, and hed accuse me of blaming everything on his condition. It was hard in the beginning when hed get angry and I didnt know yet that it was the disease talking and not really him.
Though she was stretched to the limit during those years when she was caring for the generations both before and after her at the same time, Saccoccia-Olson says she is very grateful that she wasnt alone.
Recommended Reading: How To Keep Dementia Away
Supplemental Education In Alzheimers Disease And Related Dementias
Powerful Tools for Caregivers Are you a caregiver providing assistance to a relative or friend? Please join us for a free-of-charge, award-winning education program that has helped more than 70,000 family caregivers. Our series of six classes will help you. SIX THURSDAYS When: November, 2 December, 14 Time: 10:00 11:30am *Please Note class will
Rhode Island Chapter Alzheimer’s Association
Go to Web Site | 1-800-272-3900
The Alzheimer’s Association’s mission is to eliminate Alzheimer’s disease through the advancement of research to provide and enhance care and support for all affected and to reduce the risk of dementia through the promotion of brain health. The Alzheimers Association works on a global, national and local level to enhance care and support for all those affected by Alzheimers and other dementias. Rhode Island chapters staff was trained by the National Resource Center on LGBT Aging in 2015.
SAGE FAMILY OF WEBSITES
You May Like: What Are The Symptoms Of The Final Stages Of Alzheimer’s
Rhode Island State Plan Overview
View Rhode Island’s State Plan
In April 2012, the Rhode Island General Assembly enacted Senate Bill 2858, directing the Long-Term Care Coordinating Council to lead a workgroup on the development of a state plan, to be co-chaired by the chair of the Long-Term Care Coordinating Council, the lieutenant governor or designee and the director of the division of elderly affairs. The Workgroup collected public feedback and published Rhode Islands State Plan on Alzheimers Disease & Related Disorders in September 2013. In February 2019, the Long-Term Care Coordinating Council published the 2019 Update, Rhode Island State Plan on Alzheimer’s Disease and Related Disorders.
Individuals living with Alzheimer’s in Rhode Island
This number is projected to increase 12.5% between 2020 and 2025.
Nationally, there are more than 6 million Americans living with Alzheimer’s. This number is expected to more than double by 2050.
Community Forum On Alzheimers Disease Other Dementias To Be Held At Edward King House On June 17
Be the first to know about breaking news, articles, and updates.
Newport residents and community stakeholders are invited to take part in a community forum on Alzheimers disease and other dementias hosted by the Alzheimers Association Rhode Island Chapter. The event will take place at the Edward King House in Newport on Friday, June 17, beginning at 9 a.m.
The forum provides an opportunity for residents to come together to ask questions about the disease, share their personal experiences, and provide input on how the Alzheimers Association can better meet the needs of the community. Participants will also learn about available resources and discover volunteer opportunities to support families affected by the disease.
Currently in Rhode Island there are more 24,000 individuals living with Alzheimers and over 38,000 family and friends providing their care, said Donna McGowan, Executive Director for the Alzheimers Association Rhode Island Chapter. The Alzheimers Association wants to connect and convene our community members with the hopes to help us better serve those who are impacted. Working together with local volunteers, we can ensure families have the resources needed to face the many challenges associated with the disease.
Alzheimers Association
Support local, independent journalism
Read Also: How Does Alzheimer Affect Other Body Systems
Alzheimers Association Rhode Island Chapter 11th Annual Caregivers Journey Conference
Alzheimers Association Rhode Island Chapter 11th Annual Caregivers Journey Conference
Our conference focuses on helping personal and professional caregivers develop the understanding and skills necessary to support a person living through the journey of Alzheimer’s and all other dementia. Please note this is a hybrid conference: Tuesday May 3rd takes place IN PERSON at the Crowne Plaza Warwick RI Wednesday May 4th takes place VIRTUALLY via Zoom. You will receive Zoom access information 24 hours in advance and the morning of conference. Please be sure to register using a valid email address. Caregivers and Health Care Professionals can register at
View PDF for more information.
| Attachment |
|---|
The Alzheimers Association Rhode Island Chapter Virtual Programs
The Alzheimers Association Rhode Island Chapter, in partnership with the Massachusetts New Hampshire Chapter, is offering support groups, professional and caregiver educational programs online amid the COVID-19 outbreak. Resources: Virtual Programs Educational Webinars Alzheimers Association Rhode Island Chapter
Challenging Behaviors: The Good, Bad and How to Support Creative Interventions Friday, May 17, 2019 09:30 AM 11:00 AM Warwick Library 600 Sandy Ln Warwick, RI 02889 Join the Alzheimers Association Rhode Island Chapter for this important educational presentation. This program will first share the importance of identifying the caregiving team. We will be
Recommended Reading: How Does Sleep Prevent Dementia
It Was Near The End Of Her Fathers Life That She Made The Decision To Do Something That Would Not Only Honor Her Parents Memory But Provide Her With Some Peace Of Mind Of Her Own
It would even help to offer a measure of hope that her daughter and future generations may not have to face the same fate. She decided to participate in Alzheimers research.
Dr. Salloway at the Memory and Aging Program had cared for both of my parents, and my mom had participated in the Aricept trial, she says. Toward the end of my dads illness Dr. Salloway mentioned the opportunity for me to participate in a study too, and I said Sure, anything I can do, I will.
Saccoccia-Olson enrolled in the Generations Study, which is studying the effectiveness of medication aimed at slowing or preventing the start of Alzheimers in people who are at increased risk of developing the disease.
I found it very beneficial because I figured with both parents having the disease that I was certainly at high risk. But the genetic testing in the study showed that Im actually only at moderate risk, and my MRI and PET scans came out normal. That really gave me peace of mind, Saccoccia-Olson says.
Although learning the results of these tests may not be for everyone, she says she preferred to have the knowledge rather than the wondering and worrying.
What This Past President Of Alzheimer’s Association Ri Wants You To Know
Susan Saccoccia-Olson of Cranston, RI knows a lot about Alzheimers. Shes a volunteer for Alzheimers Association Rhode Island and in the past had served on the organizations board of directors for six years, two of which as its president. She also works with seniors in her job doing Medicare outreach and education for Blue Cross Blue Shield of Rhode Island.
But thats not how shes come to know so much about Alzheimers. Her knowledge, unfortunately, comes from a much more personal place shes lost both of her parents to the devastating disease.
Like many whose lives have been touched by Alzheimers, she suffered not only from the loss of her parents but also during the nearly 15 years she spent as caregiver to not only them but also raising her daughter years when her own well-being was the last thing on her list.
You May Like: Is Lewy Body Dementia Genetic