Friday, December 2, 2022
HomeMust ReadHow To Start An Alzheimer's Support Group

How To Start An Alzheimer’s Support Group

Lewy Body Dementia Association

Caregiver Support Groups

Key Specs

  • Membership fee: Most groups are free, some may collect voluntary donations
  • Structure:Online, phone, video conferencing
  • Details: Offers support groups specifically for spouses and has active Facebook support groups.
  • Things to consider: Support groups are not available in all states

Lewy Body Dementia is a condition involving abnormal protein deposits in the brain called Lewy bodies. These deposits affect brain chemical levels, which may result in abnormal thinking, movement, and behavior, as well as mood disorders.

Lewy Body Dementia Association offers several types of virtual groups, internet discussion forums, and more. Its offers virtual, meetings for anyone living with LBDeven those who are not yet diagnosed but are seeking information.

If you’re seeking a combined support group for people diagnosed with Lewy body dementia and their care partners, Living Together with Lewy is another Facebook group that is available. This one aims to help those who are newly diagnosed, people with early symptoms of the condition, and others who are seeking advice around a possible diagnosis.

LBDA also offers an online support group if you have a spouse with Parkinsons disease dementia or Lewy body dementia : LBD Caring Spouses.

Find A Caregiver Support Group

Taking care of yourself is one of the most important things you can do as a caregiver. One of the best ways you can care for yourself is to build a strong support system. You can get that through our caregiver support groups. We are currently offering weekly virtual caregiver support groups, open to the public.

If you need support, please leave us a message at and we will respond to your needs.

Alzheimers Support Groups For People Living With Alzheimers

AlzConnected

Powered by the Alzheimers Association, AlzConnected is a free online community. As the name suggests, the group offers a place for people living with Alzheimers to connect, share stories, and support one another. The site features an active message board where people can get and give advice.

This message board offers thousands of posts on a variety of topics, including I Have Alzheimers or Another Dementia, What Would You Tell Your Future Care Partner? Alzheimers Under Age 65, and many more. There is also a section for discussion in Spanish, as well as a forum to explore questions, issues, and concerns about FDA-approved treatments for Alzheimers disease.

Memory People

Memory People was founded in 2010 by Rick Phelps after he was diagnosed with early-onset Alzheimers at the age of 57. The group was created to provide assistance, information, support, and encouragement. Its a great place for people to hear the stories of others, and share their own. The page is also home to a collection of videos hosted by Rick. From stigma in dementia to caregiver guilt, his videos explore a range of topics.

Much more than simply a place to gather information, Memory People has grown into a community.

CONNECT WITH A SPECIALIST

Family Caregiver Alliance

You can also join an e-mail network, where you can connect with other family caregivers to ask questions and freely talk about your challenges in a safe place.

Also Check: Senile Dementia Treatments

Why Become A Dementia Coach/moderator

  • You get to be one of the few who can post promotional posts or coaching program once a week plus you will be able to highlight your coaching program to 30k plus members in the Alzheimers and Dementia Support Group.
  • Access to this group as a moderator/coach will increase your impact and influence in the group and dementia realm
  • As a coach/moderator you will have access to approve or delete posts and create influence in the group

How To Find An Alzheimers Support Group Online

Tears, laughter, understanding: Inside a dementia ...

Online Alzheimers support groups offer flexibility in terms of time and travel, as well as safety due to COVID-19 concerns. Depending on the type of online group, sessions may be in a synchronous format where everyone joins at the same time, such as live group talks or meetings.

Other groups, such as message boards and community chats, may be asynchronous. This means you can log on whenever you want, which gives you a bit more flexibility in terms of time.

Some Alzheimers organizations, such as the Alzheimers Association, offer virtual resources as well. Here, along with support groups, you can find online message boards for people living with Alzheimers disease, plus their friends, family members, and caregivers.

The Alzheimers Associations free message boards are offered via ALZConnected. One message board called I Have Alzheimers or Another Dementia is designed specifically for people affected with this brain condition.

This is a public forum, though, so be careful about sharing any personal information. And because message boards are intended for information only, not medical advice, its best to check with your doctor before trying any recommendations you read.

You may also decide to join one Alzheimers support groups on Facebook, such as:

Another virtual option to support caregivers is the Alzheimers Foundation of America helpline.

You May Like: What Color Ribbon For Dementia

Alzheimers And Dementia Caregivers Support Group

Join us for this support group and discuss the various issues facing caregivers of loved ones with Alzheimers disease and other dementias. Caregivers will also receive education and information on resources and interventions that are available throughout the course of care for patients with dementia and Alzheimers disease. Our group is affiliated with Alzheimers New Jersey . We will have guest speakers on different topics once every three months.

All support group meetings are currently taking place virtually through Zoom. The link to the meeting will be emailed about 30 minutes prior to the start of group.

Ucsf Memory And Aging Center Clinic

Younger-onset Alzheimers disease is a rare form of the illness. It involves a type of dementia that impacts people under the age of 65.

According to the Alzheimer’s Association, approximately up to 5% of people with Alzheimers disease develop symptoms before age 65. This indicates that approximately 250,000 people in the U.S. have been diagnosed with the younger-onset form of AD.

If you live in the San Francisco area, however, theres a local community sponsored by the UCSF Memory and Aging Center Clinic. It was created specifically for those who have been diagnosed with young-onset AD and their caregiver or spouse/significant other. For group members to qualify, they must: be in the mild or early stage of Alzheimers disease, have been diagnosed before age 65, or have a significant other or caregiver who will participate in the group.

It is free to join and participate in, meets bi-monthly, and offers education on Alzheimers disease and new research developments. The community aims to provide support and validation for the struggles the families are going through, while also teaching coping skills and discussing emotional challenges.

Read Also: What Color Is Alzheimer’s Ribbon

Online Family Caregiver Support Groups

AgingCares Caregiver Forum

Caregiving questions of all sorts are quickly answered on this active forum, or message board, from A Place for Moms partner site, AgingCare. Users can select from three separate tabs: Recent Activity, Most Popular, and Needs Answers. Anyone can read the Q& As though you must to post your own questions or answers.

Family Caregiver Alliance

FCAs online caregiver support group focuses on family caregivers for patients with both physical and cognitive disorders like Alzheimers, stroke, Parkinsons, and brain injuries. This FCA group offers a safe place to discuss the stresses, challenges, and rewards of providing care for a loved one.

Caregivers Connect

Caregivers Connect allows the voices of family caregivers to be heard. This support group aims to inspire caregivers and provide helpful resources to better care for senior loved ones. It welcomes new people and encourages members to invite anyone who may benefit from these discussions.

Alzheimer’s Support Groups: Tips For Success

How to accept help as a dementia caregiver: Dementia Caregiver Support Series

Caregiving for a loved one with Alzheimer’s disease or related dementia can be incredibly rewarding, but it can also be tremendously discouraging and stressful. After many years supporting patients and families at Banner Alzheimer’s Institute , we’ve learned how helpful it can be to talk with others who are going through similar experiences.

Through our Family and Community Services program, we’ve developed a variety of support groups that bring together a range of caregivers, depending on their life circumstances. Our Circle of Friends Support Group is designed to help a broad network of spouses, adult children, family and friends solve their common problems. Our Caregivers Support Group for Adult Children provides these families the opportunity to discuss and seek resolution for the particular challenges faced in caring for your mother or father. Another is our Men Who Care group, designed specifically for the challenges of men, who may not be as experienced or as comfortable as women in the caregiver role. These support groups are aimed at addressing the unique needs of both patients and families, and we’ve seen countless people benefit from this programming.

Our support groups offer a safe haven to share the victories and frustrations alike, and allow caregivers to listen and learn from others who have been faced with similar challenges.

Also Check: What Stage Of Alzheimer’s Is Aphasia

Ways Alzheimers Caregivers Can Find Support Online

1. The Alzheimers Associations Virtual Support GroupsWhile family and friends can be invaluable, its also helpful to talk with people who are facing the same challenges as you. Because of that, the Alzheimers Association hosts a number of virtual support groups every day.

Unlike an online chat room or bulletin boardlike youd find on reddit.com, for examplethese groups are facilitated by trained professionals. They offer specialized groups for early-stage Alzheimers, adult caregivers, and others with specific needs.

Once youre on the Support Groups page, you can search by keyword or simply peruse all events to find one that appeals to you.

Youll need to create an account to register for a support groupits free and takes two minutesand then you can join by phone or through Zoom. The Alzheimers Association website offers a 24-hour helpline for assistance if needed.

If you prefer a bulletin-board format, the organization features ALZConnected , which is also free, easy to navigate, and available for anyone affected by Alzheimers or another dementia. Theres a caregivers forum thats geared toward sharing experiences and offering support to one another.

Other helpful Facebook groups include:

Many of these groups are private, but if you click Join Group in the top right corner, a request is sent to an administrator and often quickly approvedonce they confirm youre not a spambot.

Find Support Near You

Use our dementia directory to find local support services for people with dementia and their carers in England, Wales and Northern Ireland.

Currently, we are unable to display any care services under the Care homes or Care or support in the home categories. We apologise for any inconvenience and were working to rectify this situation as soon as possible. In the meantime, please look at the directories on the Care Quality Commission and Regulation and Quality Improvement Agency websites.

Now that national restrictions have been lifted, we are reopening more of our face-to-face and group services. Local circumstances vary, so please search our dementia directory above to find what we are able to run in your area.

For any technical issues with our dementia directory, please call Customer Services on .

If you are looking to list your services, please go to dementia directory business.

Don’t Miss: Dementia Ribbon Color

Alzheimers Support Group To Start Three

LOCK HAVEN The Alzheimers Support Group will host a guest speaker at its meeting Tuesday at 7 p.m. in Conference Room B of Susque-View.

Hilary Harry, education and outreach coordinator for The Alzheimers Association Greater Pennsylvania Chapters State College office, will present the first of the three-part series The Stages of Alzheimers beginning with Early Stages.

Her presentations will help caregivers recognize the signs of early-stage memory loss and learn how to deal with some of the behaviors associated with early stages.

The State College office provides services to six central Pennsylvania counties including Clinton County, and Harry has more than 17 years of experience as a home health and hospice social worker.

The cause of Alzheimers and related dementias has become a special area of interest to her through her work with people and families affected by these diseases and disorders. She sought out educational opportunities to better equip herself in providing social service support and began to present health talks to area senior centers on a variety of topics related to dementia. When the opportunity arose to join the Alzheimers Association team in its efforts to find a cure and its support and education of caregivers, she said she was thrilled to take on the challenge. She lives in Centre County, where she relocated in 1987 after earning her Bachelor of Social Work from George Mason University.

More Ways Technology Can Help Support Caregivers

Alzheimer

Online support groups can be invaluable when it comes to sharing your thoughts on caregiving and finding support. But thats not the only way technology can be useful, says Preet Anand, founder of an app called Snug Safety, which checks in on users and alerts emergency contacts if theres no response.

Because it works on a smartphone, the app can send medical help to a users last known location, as opposed to a home addressa particularly notable feature for people with Alzheimers who are in danger of wandering.

What many caregivers want is assurance on a daily basis that their loved one is okay, especially if its a day they wont be seeing them, Anand says. And for the person with Alzheimers, it can give them a sense of independence.Monitoring apps arent the only thing that can make a difference, he says. There are hundreds, if not thousands, of apps that can help improve quality of life as well. That might be an app that provides stimulating games, language lessons, music trivia, and other fun activities.

Some apps allow you and your loved one to use them together, which can be a great way to support both of you. For example, MindMate was founded by former caregivers and designed for people with dementia. Some of its features include puzzles, simple workout routines, and entertainment to keep your brain engaged.

Read Also: Neurotransmitter Involved In Alzheimer’s

Dementia Caregiver Support Group

Find a safe space to share what youre going through with people who understand. Whether youre caring for your loved one at home or facing the difficulty of caregiving from a distance, we are here for you.

For more information and to register, please email or call . Upon registration you will receive the password. All meetings are password protected.

Local Support Group Hosted By The Alzheimer’s Association And The Vanderbilt Memory & Alzheimer’s Center

In collaboration with the Alzheimers Association, we offer support groups for individuals recently diagnosed with mild cognitive impairment or early stage Alzheimers disease and their loved ones.

The support group offers a comforting environment for people with new onset or early symptoms of memory loss to talk with other adults who understand their experience.

You May Like: What Color Ribbon Is For Alzheimer Disease

Caregiver Support Is A Phone Call Away

Talk to caring people for practical caregiving information and help finding local resources/services.

If the person you care for asks questions repeatedly, has trouble performing simple tasks, or forgets recent events, he or she may have a form of dementia.

There are several causes for dementia, so you should have the person diagnosed by a doctor.

Some dementia may be caused by factors that can be treated, such as drug interactions, severe diabetes, vitamin deficiencies, or depression. The most common kind of dementia is Alzheimer’s Disease. It is not curable.

There are many helpful resources for family caregivers coping with dementia, including:

Events For Alzheimers Awareness

Canadian groups funded to bolster multicultural supports for people with dementia

If youre not quite ready to commit to joining any particular Alzheimers support group, you may consider attending an event first.

While many in-person events have gone virtual in response to the COVID-19 pandemic, some areas are still holding outdoor walks and other fundraising events. For example, you can find or start a team for Walk to End Alzheimers here.

Other events may be held online, such as conferences, group chats, and more. These also allow you to connect with others in a shared space.

The Alzheimers Foundation of America, for example, has daily virtual events like educational classes, arts and crafts, movement activities, and more. Check out the monthly calendar for more information.

Additionally, you may find more events throughout the month of June, which is considered Alzheimers and Brain Awareness Month.

You May Like: What Color Ribbon Is For Dementia

Caregiver Support Group Discussion Topics

  • How Do I Get Over the Pain of Being Abandoned by My Husband?
  • Caregivers face many challengers, including the tendency to neglect of their own physical and emotional health in order to help others. Support groups are one way in which caregivers can decrease their stress. These groups focus on topics that can help them share their experiences, offering comfort and understanding and teaching important coping skills.

    Best Caregiver Support Groups Online And In

    If youre responsible for caring for an elderly loved one, caregiver support groups are a way for you and other caregivers to share your experiences, which can include information, insight, advice, or words of encouragement. Whether youre an in-home caregiver, caring for someone with Alzheimers or another form of dementia, or have a family member in an assisted living community, each person in a caregiver support group can learn from others who face similar challenges

    Don’t Miss: Alzheimers Dement

    Benefits Of A Caregiver Support Group

    Benefits of joining caregiver support groups include:

    • Forming friendships, which can reduce feelings of loneliness, isolation, anxiety, or distress
    • Getting advice from other caregivers regarding practical solutions, treatment options, and what to expect in the future caregivers can also share their tips and improve or learn new healthy coping skills
    • Gaining a sense of empowerment and control
    • Giving a better quality of life to your senior loved one

    RELATED ARTICLES

    Most Popular