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Non Profit Organizations For Dementia

Projects Funded Under The Dementia Community Investment

Dementia demo meant to increase awareness, understanding

Enhancing Minds in Motion®as a Virtual Program Delivery Model for People Living with Dementia and Their Care PartnersAlzheimer Society of Ontario Funding: up to $716,140

This project will adapt and enhance ASO’s existing Minds in Motion®program by offering it virtually in Ontario, as well as in both official languages. Minds in Motion®is an 8-week, evidence-based program that incorporates physical activity, socialization and cognitive stimulation for people living with dementia and family/friend caregivers. A virtual version of the program will help address and overcome the social isolation felt by people living with dementia, their family, friends and caregivers due to COVID-19 public health measures. A virtual program will also allow rural populations and participants access to resources and supports that have primarily been available in urban settings. In addition, by making the program available in French, this project is expected to increase its access to various communities. The ASO will share the enhanced program with all Alzheimer Societies across the country through its existing networks.

Ten Online Modules Over Ten Weeks for Adult Learners eLearning for Family/Friend Care Partners of People Living with DementiaMcGill UniversityFunding: up to $758,430

What Is The Impact Of The Cure Alzheimers Fund

The organization explains that it has funded over $146 million for research and awarded more than 600 grants, with all donations going to research because board members finance overhead expenses.

Initiatives funded by the organization include a potential treatment selected for the National Institute of Health Blueprint for Neuroscience Research program and the Alzheimers in a Dish study, which could accelerate drug testing.

Alzheimers Drug Discovery Foundation: Dedicated To Developing Drugs To Cure Alzheimers

The Alzheimers Drug Discovery Foundation was founded in 1998 by co-chairmen Leonard A. Lauder and Ronald S. Lauder, and led by Howard Fillit. The charity provides funding to scientists around the world who are investigating novel drugs to prevent, treat, and cure Alzheimers disease.

Their impact and transparency ratings: The Alzheimers Drug Discovery Foundation holds the Bronze Seal of Transparency from GuideStar, and a 100% encompass rating on Charity Navigator, for finance and accountability.

We will conquer Alzheimers disease.

Alzheimers Drug Discovery Foundation

What they do: The Alzheimers Drug Discovery Foundation aims to bridge the gap in funding by supporting preclinical drug discovery and early-stage clinical trials of novel Alzheimer drugs, in the hope of finding a cure.

What they have achieved: To date, the Alzheimers Drug Discovery Foundation has awarded over $193 million to more than 680 Alzheimer drug discovery programs and clinical trials in 19 countries. In 2021, the US Food and Drug Administration approved Amyvid the first diagnostic test for Alzheimers disease which was funded in its early stages by this charity.

Ways to contribute: You can directly donate money to the Alzheimers Drug Discovery Foundation through their website, organize a fundraising event, or purchase items from their online shop. 100% of all donations go towards funding drug research programs.

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Nearly Every Minute Of Every Day A New Case Of Alzheimers Is Diagnosed In The Us Will You Or Someone You Love Be Next

  • Americans are living longer, 20% of the population is expected to be over 65 years of age within fifteen years.
  • 1 out of 3 people over age 65 will die as a result of Alzheimers.
  • 1 in 9 over the age of 65 currently have it, and 2/3s of these are women.
  • Alzheimers does not discriminate it affects every ethnic group, though due to socio-economic reasons, has higher incidences in Hispanic and African American populations.
  • 15 million caregivers spent 17.5 billion unpaid hours in 2012 caring for those with the disease, causing added stress, lost work time, and increased depression, and resulting in $9.1 billion in health care costs for the caregivers alone.
  • Costs to our healthcare system are staggering-estimated to reach $1.2 trillion by 2050.
  • The disease can start up to twenty years before diagnosis-as early as the age of thirty for those at high risk-yet we have no idea what causes it in 99% of all cases.
  • There is no known cure or reliable prevention.

Over the last thirty years most of the focus on Alzheimers has been on pharmaceutical solutions for treating the symptoms, not on finding a cure. The Alzheimers Research Foundation, unlike education or caregiver support organizations, is a 501c non-profit Alzheimers charity completely dedicated to finding a cure for this disease that almost certainly affects at least one person YOU know.

What We Aim To Solve

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In the world today, and the U.S. specifically, there is a tremendous need for basic information regarding Dementia. Besides, individuals and families are looking for local resources to help provide care, services, products, and planning. The need to get practical Dementia advice and insight is almost without limits. Our inquiries increase in direct proportion to our outreach. People are looking for Dementia answers. Lastly, we seek to create opportunities and moments of joy for those most in need – those living lives of isolation in nursing homes and other Dementia communities.

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A Comprehensive List Of Leading Dementia Organizations And Charities

If you or your loved one has been diagnosed with Alzheimers or another type of dementia, you may be searching for resources or ways to help fight the disease.

Dementia organizations can help guide families through challenges, connect them with support groups, and even fund specialized activities in memory care communities and nursing homes. Oftentimes, they sponsor fundraisers where families can meet others going through a similar journey. Additionally, dementia research charities are an opportunity to help top scientists make new discoveries related to dementia treatments and preventative measures.

Read on to learn about 12 dementia organizations and how you can contribute to each organizations unique mission. Each ranks highly on Charity Navigator, a nonprofit site that analyzes financial statements and practices of other nonprofit organizations.

In this article:

The Victorian Ageing Alliance

The Victorian Ageing Alliance is a non-profit organization that connects people with Alzheimers disease, dementia, and other memory disorders. The VAA works to reduce the stigma associated with these conditions, support families of those affected, and improve the quality of life for those living with these conditions.

Read Also: Is Sundowning A Symptom Of Dementia

Best Charities That Fight Dementia

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  • Organizations Working To Advocate For The Elderly

    Dementia Society of America – How the “Ginny Gives” & DSA Started

    The elderly are a large and growing population, and they face many challenges. Many organizations work to advocate for the elderly, such as the Alzheimers Association, the National Mental Health Foundation, and the Victorian Ageing Alliance. understanding what these organizations do is important for anyone advocating for the elderly. Here, we will provide a list of 10 organizations working to advocate for the elderly.

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    Spreading The News Moving The Needle

    “Being an advisor makes me feel like I’m doing something positive to move the needle forward,” Adams says. “There’s so much more that needs to be done everyone either knows someone with dementia or knows someone caring for someone with dementia.”

    Rebecca passed away in 2019. Today, Adams lives in South Carolina and continues to direct people to DSA for support.

    “I can’t think of anything more rewarding than being able to care for my mother it was a way of repaying her for everything she did for me.”

    “I meet people all the time who don’t know where to turn or what to do, and I hand out DSA’s Aware and Share cards. You can keep them in your wallet if you or someone you’re with has dementia, so if you go to a restaurant or get on a bus, you can show that card to someone so they will have more patience with you,” she says.

    At a recent community yard sale, Adams placed a stack of cards on her table.

    “I got such a positive response. These cards start a conversation, and so many people had a story to tell it’s like I was having a therapy session in the middle of this huge yard sale,” she recalls.

    What Does The Fisher Center For Alzheimers Research Foundation Do

    This dementia organization is dedicated to understanding the causes of the disease, improving care for people with it, and finding a cure. The foundation also manages ALZinfo.org to raise awareness and educate the general public with in-depth information about studies, research, and management approaches.

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    What Does The Alzheimers Foundation Of America Do

    The AFA operates a hotline staffed by licensed social workers, runs a National Memory Screening Program with free screenings across the U.S., and offers additional training and continuing education for professional caregivers. The foundation also provides grants to organizations offering direct care to people with Alzheimers.

    How Can Someone Contribute To The Lewy Body Dementia Association

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    To support the LBDA, you can give monetary donations, facilitate a support group, provide in-kind donations of professional services, plan a fundraiser, donate an unwanted vehicle or boat, and more.

    The Association of Frontotemporal Dementia. 2021 annual report.

    The information contained in this article is for informational purposes only and is not intended to constitute medical, legal or financial advice or to create a professional relationship between A Place for Mom and the reader. The recommendations contained herein are based on the opinions of the author. Always seek the advice of your health care provider, attorney or financial advisor with respect to any particular matter, and do not act or refrain from acting on the basis of anything you have read on this site. Links to third-party websites are only for the convenience of the reader A Place for Mom does not endorse the contents of the third-party sites.

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    Annual Report To Parliament On Canada’s Dementia Strategy

    Each year the federal Minister of Health prepares a report to Parliament on the national dementia strategy.

    The 2021 Report to Parliament shares a Canada-wide overview of some of the many dementia-related efforts underway across the country. This report highlights how many different organizations, including the federal government, are supporting the strategy’s national objectives and reflects the variety of those efforts.

    What Is The Impact Of The Lewy Body Dementia Association

    The LBDA details that it collaborates with a network of 26 academic medical research institutions, which, when combined, provided clinical care to over 17,000 people with the disease in 2020. It also trained more than 7,500 professionals in the clinical management of Lewy body dementia and connected more than 8,000 people with licensed professionals that year.

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    The National Mental Health Foundation

    The National Mental Health Foundation works to improve mental health, reduce the stigma associated with mental illness, and empower people to live meaningfully in their communities.

    The foundation helps change attitudes about mental illness by providing education, advocacy, and research. They also provide information and support for people who struggle with mental illness. The foundation focuses on developing a culture of understanding about mental health that encourages acceptance and reduces discrimination.

    Dementia Society Of America: Serving The Nation For All Causes Of Dementia

    Arjo seasons greetings 2020

    Kevin Jameson founded the Dementia Society of America in 2013, after being inspired by his experiences of living with his wife who suffered from dementia. The charity is now the nations leading volunteer-driven dementia awareness organization, providing hope and knowledge to thousands of dementia sufferers and their families every month.

    Their impact and transparency ratings: The Dementia Society of America holds the Platinum Seal of Transparency from GuideStar. They also have a 94% encompass rating for finance and accountability from Charity Navigator.

    We know you matter

    Dementia Society of America

    What they do: The Dementia Society of America provides a variety of dementia awareness materials and resources for individuals and organizations across America, including a set of handy online directories to help families find valuable support close to them. Their Ginny Gives Grant program also offers caregivers and communities access to meaningful therapies that can enrich the lives of dementia sufferers through art, dance, music, and touch. The charity can be contacted through their 1-800-DEMENTIA line by anyone looking for more information or advice on Alzheimers or any other form of dementia.

    Ways to contribute: You can make a direct donation through the Dementia Society of Americas website. You can also apply to be a part of the Ginny Gives Grant Program or make a bequest to the Dementia Society of America in your will or trust.

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    A Final Goodbye A Hopeful Future

    About a year after Jameson created DSA, Ginny’s organs began failing. She died in July 2014 while Jameson held her hand.

    He believes Ginny would be proud of what DSA has accomplished and how many families have been helped in her honor.

    “We’ve achieved exactly what I had envisioned, yet I’m totally blown away by the good things that have happened,” says Jameson.

    The Journey Toward Hope

    In 2012, Vanessa Adams began caring for her mother, Rebecca, who was experiencing memory lapses.

    “I was living in Scottsdale, Arizona, and my mother was in Camden, South Carolina, so I was trying to manage her care long-distance,” recalls Adams. “The neurologist said she had some cognitive impairment, but the scans didn’t show any Alzheimer’s disease.”

    Adams struggled for months to try to understand what was wrong with her mother.

    “I kept Googling, and finally discovered the Dementia Society of America,” she recalls. “The fact that it covered various types of dementia was key, and the biggest lifeline was finding somewhere I could go for information and validation.”

    “Just learning that cognitive impairment was an actual diagnosis changed everything,” Adams adds. “Had I known about DSA when my mother was first diagnosed and read their information or watched their videos, that would’ve been a tremendous help.”

    Adams moved her mother to Arizona in 2016 and says caring for her full-time was both the worst and best experience of her life.

    “When you’re in it, you don’t realize how difficult it is,” Adams says. “On any given day, what I went through was torturous. But at the same time, I can’t think of anything more rewarding than being able to care for my mother it was a way of repaying her for everything she did for me.”

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    Military Spouse Employment Partnership

    MSEP is part of the Department of Defense’s broader Spouse Education and Career Opportunities initiative, which seeks to strengthen the education and career opportunities of military spouses by providing career exploration opportunities to help them understand their skills, interests, and goals education and training to help them identify academic, licensing, or credentialing requirements that can help them reach their career goals employment readiness assistance to optimize their self-marketing skills and employment connections that help them find and maintain a rewarding career.

    Through the national employment and career partnership program, Senior Helpers joins more than 390 partner employers across the country who are committed to helping connect military spouses with portable careers. To learn more, .

    Help Bring Musicto Those In Need

    Dementia Insight

    Millions of aging Americans living in long-term care facilities face cognitive and physical difficulties and have left behind their familiar surroundings, familiar faces, and even their favorite music. Despite the best efforts of loved ones, their lives often lack meaning, spontaneity, choice, and reliable social interaction.

    But theres reason to hope for a better life as we age. At Music & Memory, we help people in nursing homes and other care organizations who suffer from a wide range of cognitive and physical challenges to find renewed meaning and connection in their lives through the gift of personalized music.

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    Fisher Center For Alzheimer’s Research Foundation

    The Fisher Center for Alzheimer’s Research Foundation at alzinfo.org was founded by philanthropists Zachary Fisher and David Rockefeller in 1995. Their goal was to build a top of the line research center to seek a cure for Alzheimer’s.

    In addition to the research they conduct, FCARF provides educational resources through their website, publishes a quarterly magazine called Preserving Your Memory, and uses the majority of their donations to partner with many other national and international researchers who share similar goals.

    Alzheimer’s Foundation Of America

    Alzheimer’s Foundation of America was founded in 2002 by a caregiver whose mother passed away after living with Alzheimer’s disease for 12 years.

    AFA seeks to provide resources to dementia caregivers, including family education, free memory screening services, dementia care training for professionals, and support groups nationwide.

    AFA directs the “Light the Nation” program that turns landmarks teal for one day each November in order to increase dementia awareness.

    More than 2,600 organizations have an AFA membership which demonstrates their commitment to quality Alzheimer’s care and ongoing education in the field. AFA provides grants to organizations to further programs directed to dementia care and support, too.

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