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How To Join Alzheimer’s Association

Our Study Is The First Of Its Kind To:

ALZ Talks: Dementia and the Whole Family
  • Enroll participants as young as 55 years old who are at risk of developing symptoms of Alzheimers disease as they get older
  • Use a blood test to rule out people not likely to be eligible based on amyloid PET imaging
  • Target the earliest changes in the brain due to Alzheimers disease by enrolling participants with intermediate levels of brain amyloid
  • Use an approach that tailors dose levels of the investigational treatment to study participants brain amyloid levels
  • Test an investigational treatment that has been shown to lower brain amyloid in people with symptoms of Alzheimers.

Amyloid PET imaging scans from a representative participant in the Phase 2 trial of BAN2401 the investigational treatment being tested in the AHEAD Study. Amyloid PET scans measure the levels of amyloid plaque in the brain. The image on the left is taken before the participant has started on the investigational treatment. The image on the right is taken after 18 months of investigational treatment with BAN2401 , indicating a reduction of amyloid plaque burden in the brain.

Make Your Miles Matter

Go the distance with ALZ Stars! Were making moves to end Alzheimers Disease one step at a time while we raise awareness and funds to benefit the research, care and support of the Alzheimers Association. When you join ALZ Stars, youll become part of a team that is passionate about finding a cure and making a difference in the lives of Alzheimers patients and their caretakers. Youll also receive benefits such as fundraising and training support, opportunities for group runs and social activities, event apparel, fundraising incentives and event weekend activities. Most importantly, there is no better benefit than the camaraderie of a team that is striving for the same vision – a world without Alzheimers.

Walk To End Alzheimer’s

The Walk to End Alzheimer’s is the world’s largest event, hosted by The Alzheimer’s Association, to bring awareness to Alzheimer’s care. This event is held once a year in over 600 communities nationwide, brings together people of different ages, backgrounds and relationships to the disease to join the battle to fight against the disease.

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Support Groups & Wellness Programs

Our Center has two initiatives that offer support to our community. The Carl Rinne Lewy Body Dementia Initiative offers six support groups across the state of Michigan specifically for those living with or caring for someone with Lewy body dementia. Click the Rinne LBD Initiative tab at the top for more information.

The Wellness Initiative offers support groups specifically for those who recently received a diagnosis of memory loss or are in the early stages of a dementia. The Wellness Initiative also offers programs, courses, and retreats specifically for caregivers caring for a family member with memory loss. Click the Wellness Initiative tab at the top for more information.

How Can I Find Out Results From A Clinical Trial

Alzheimer

In many cases, if you participated in a blinded or masked study, which means participants dont know who gets the treatment, the placebo, or another intervention, you will get information about the treatment you received. If something potentially dangerous to a participant is found, researchers are required to report that information as quickly as possible.

During the informed consent process, ask when and how the results of the trial will be reported to you as a participant. Once the study ends, ask the research team members if the study results have been or will be published and ask them to share this information with you. Results from clinical trials are usually published in peer-reviewed scientific journals. Peer review is a process by which experts review the report before it is published to ensure that the analysis and conclusions are sound. Results that are particularly important may be featured in the news and discussed at scientific meetings and by patient advocacy groups.

Published study results are also available by searching for the studys official name or Protocol ID number in the National Library of Medicines PubMed database and the National Institutes of Health registry, ClinicalTrials.gov. If you prefer to discuss the study results with someone, contact the NIA ADEAR Center at or the Alzheimers Association helpline at .

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Join The Alzheimers Association Walk To End Alzheimers

On Saturday, March 1, residents and businesses from throughout the Coachella Valley will come together to raise awareness and funds to fight Alzheimers disease at the 15th annual Alzheimers Association Walk to End Alzheimers.

In addition to the two-mile route, Walk to End Alzheimers will include a health fair, entertainment, food, awards and family festivities. Walkers who raise $100 receive a commemorative T-shirt, and there are prizes for the top fund-raising teams and individuals.

The event takes place at the Palm Desert Civic Center Park. Onsite registration opens at 9am opening ceremonies begin at 10am the walk begins at 10:30 am.

Walk to End Alzheimers is the nations largest event to raise awareness and funds for Alzheimers care, support and research. Donations benefit the Alzheimers Association the leading voluntary health organization for Alzheimers disease and related dementias. Its mission is to eliminate Alzheimers disease through the advancement of research to provide and enhance care and support for all affected and to reduce the risk of dementia through the promotion of brain health.

To register, start a team, donate, sponsor, or volunteer, contact the Alzheimers Association at www.alz.org/socal or 328.6767. For information about the California Southland Chapter, visit www.alz.org/socal or call 272.3900.

How Do Researchers Decide Who Will Participate

Researchers carefully screen all volunteers to make sure they meet a studys criteria.

After you consent, you will be screened by clinical staff to see if you meet the criteria to participate in the trial or if anything would exclude you. The screening may involve cognitive and physical tests.

Inclusion criteria for a trial might include age, stage of dementia, gender, genetic profile, family history, and whether or not you have a study partner who can accompany you to future visits. Exclusion criteria might include factors such as specific health conditions or medications that could interfere with the treatment being tested.

Many volunteers must be screened to find enough people for a study. Generally, you can participate in only one trial or study at a time. Different trials have different criteria, so being excluded from one trial does not necessarily mean exclusion from another.

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The Alzheimers Association Works On A Global National And Local Level To Enhance Care And Support For All Those Affected By Alzheimers And Related Dementias We Are One Of Many Chapters Across The Nation Providing Services Within Each Community We Are Here To Help Our Professionally Staffed 24/7 Helpline Is Always Open To Help You

As the largest non-profit funder of Alzheimer’s research, the Association is committed to accelerating progress of new treatments, preventions and ultimately, a cure. Through our partnerships and funded projects, we have been part of every major research advancement over the past 30 years.

Stay up-to-date on the latest advances in Alzheimer’s treatments, care and research. .

The Association is the leading voice for Alzheimer’s disease advocacy, fighting for critical Alzheimer’s research, prevention and care initiatives at the state and federal level. We diligently work to make Alzheimers a national priority. Join our effort.

Stay up-to-date about state policies related to Alzheimers and dementia and opportunities to take action in Michigan. .

What Kinds Of Research Can You Participate In

How to get involved in UK dementia research (subtitled)

Research involving people is called clinical research. There are two types of clinical research studies: observational studies and clinical trials.

  • Observational studies are designed to collect information from people and compare that data over time. This helps them learn how different behaviors or lifestyles relate to health and disease and to understand how a disease progresses over time.
  • Clinical trials are a type of research that tests new drugs, medical devices, surgical procedures, or behavior and lifestyle changes, such as exercise. Clinical trials may also test ways to detect and diagnose diseases and to better care for those living with diseases. Researchers determine if what is being tested, called an intervention, is safe and effective by comparing results in the test group to those in the control group.

The Alzheimers.gov Clinical Trials Finder includes listings for both kinds of clinical research studies.

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What Happens At The End Of A Clinical Trial Or Study

The length of a clinical trial or study varies, depending on what is being studied. As a participant, you will be told how long the study is expected to last before you enroll.

After a clinical trial is completed, the researchers carefully examine information collected during the study before making decisions about the meaning of the findings and whether further testing is needed. After a phase I or II trial, the researchers conduct statistical analyses to evaluate the likelihood of success to decide whether to move on to the next phase or to stop testing the treatment or procedure because it was unsafe or not effective. When a phase III trial is completed, the researchers examine the information and decide whether the results indicate that the treatment or procedure was effective or not. They also look at side effects and whether the treatment was safe.

How Can I Find Out About Alzheimers Trials And Studies

Check the resources below:

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European Exploration And Settlement Prior To 1800

Carte de la Louisiane et du cours du Mississipi

French explorers and explored the in 1673. Marquette soon after founded a mission at the in . In 1680, French explorers under and constructed a fort at the site of present-day , and in 1682, a fort atop in today’s Starved Rock State Park. French Empire came south to settle particularly along the Mississippi River, and Illinois was part of first , and then of until 1763, when it passed to the British with their defeat of France in the . The small French settlements continued, although many French migrated west to and , to evade British rule.

A few British soldiers were posted in Illinois, but few British or American settlers moved there, as the Crown made it part of the territory reserved for Indians west of the Appalachians, and then part of the . In 1778, claimed for . In a compromise, Virginia ceded the area to the new United States in the 1780s and it became part of the , administered by the federal government and later organized as states.

Get Ready To Walk With Alzheimer’s Texas

2020 Walk to End Alzheimer

We need your help to give ALZ the boot! We are so excited to be able to hold our Alzheimer’s Texas Walks! Our walks are the only Alzheimer’s walks fundraisers where 100% of the funds you raise stays in Texas. Join us to raise awareness about Alzheimer’s and related disorders, support families currently facing the disease, honor those we have lost.

Form a team, grab a friend, gather your family and walk for fun to help support our caregiver educational programs.

Join us in person to walk! Bring out your family, friends, and loved ones to show support and rally together to fight against Alzheimer’s disease!

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Alzheimer’s Association International Conference

In 2000, the Alzheimer’s Association anticipated establishing and running the Alzheimer’s Association International Conference and has made improvements in attendance, conceptual submissions and research-based presentations, and media relationships. The purpose of the AAIC is to join researchers together from all around the globe to report and converse about innovative research and data on the source, findings, cure, and prevention of Alzheimer’s disease and associated illnesses. The AAIC is held annually and is the world’s only largest forum for sharing research regarding the dementia research community.

They accept thousands of abstract submissions and hold more than 2,000 scientific meetings to touch the millions of people affected by Alzheimer’s with the use of print newspapers, radio broadcasting, and television newscast exposure. The AAIC has gained news coverage from ABC, the BBC, CBS, CNN, NBC, the Associated Press, Reuters, Good Morning America, The Wall Street Journal, The Washington Post, USA Today, WebMD.com and Forbes.com. Through the customs of the Alzheimer’s Association International Conference on Alzheimer’s Disease , the AAIC attempts to gather authority figures from more than 70 different countries to network and converse the most current dementia research outcomes and ideas in 2018.

What You Can Expect From Aaic 2022

The AAIC experience is defined by a diverse scientific program, which is shaped by your work and for your work. Whether you attend AAIC in-person or online, there are many reasons to register for the world’s premier dementia research conference:

  • Hear from leaders in the field with plenary sessions.
  • Learn about breakthroughs in dementia science from more than 3,000 poster presentations and over 650 podium presentations on basic science, emerging research, innovative practice techniques, imaging, technology and more.
  • Stay at the forefront of research with the Emerging Concepts Series, which explores the newest findings in basic science.
  • Network with thousands of dementia researchers at all career stages from around the world through both organized and informal opportunities.
  • Get the opportunity to elevate your career and the visibility of your lab, university or organization, thanks to coverage from prestigious media outlets like The New York Times, The Wall Street Journal, CNN, NBC, NPR and more.
  • Mingle with fellow attendees at events like the Welcome Reception, ISTAART Networking Reception, AAIC After Hours Reception, the 5k Fun Run and daily morning yoga.
  • Join ISTAART to maximize your AAIC experience and stay connected year-round.

Whether youâre a student investigator, seasoned researcher, clinician or anyone else in the field of Alzheimerâs and dementia science, thereâs something for everyone at AAIC.

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Vanderbilt Memory & Aging Project

Founded in 2012, VMAP is a longitudinal study tracking the impact of vascular health on brain health and Alzheimer’s disease risk over time. VMAP is actively recruiting new participants who are 50 years of age or older.

Once enrolled, VMAP participants complete study activities over a three-day period every 18 months to 2 years. These follow-up visits provide important information about changes over time. Study activities include a physical examination, cognitive testing, a brain MRI, a heart MRI, a lumbar puncture, and other health monitoring activities.

What Else Should I Consider

Alzheimer’s Association 2022 Alzheimer’s Disease Facts and Figures

Consider both benefits and risks when deciding whether to volunteer for a clinical trial.

While there are benefits to participating in a clinical trial or study, there are some risks and other issues to consider as well.

Risk. Researchers make every effort to ensure participants safety. But all clinical trials have some risk. Before joining a clinical trial, the research team will explain what you can expect, including possible side effects or other risks. That way, you can make an informed decision about joining the trial.

Expectations and motivations. Single clinical trials and studies generally do not have miraculous results, and participants may not benefit directly. With a complex disease like Alzheimers, it is unlikely that one drug will cure or prevent the disease.

Uncertainty. Some people are concerned that they are not permitted to know whether they are getting the experimental treatment or a placebo , or may not know the results right away. Open communication with study staff can help you understand why the study is set up this way and what you can expect.

Time commitment and location. Clinical trials and studies last days to years. They usually require multiple visits to study sites, such as private research facilities, teaching hospitals, Alzheimers research centers, or doctors offices. Some studies pay participants a fee and/or reimburse travel expenses.

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What Happens When A Person Joins A Clinical Trial Or Study

Once you identify a trial or study you are interested in, contact the study site or coordinator. You can usually find this contact information in the description of the study, or you can contact the NIA Alzheimers and related Dementias Education and Referral Center by calling or emailing . Study staff will ask a few questions on the phone to determine if you meet basic qualifications for the study. If so, they will invite you to come to the study site. If you do not meet the criteria for the study, dont give up! You may qualify for a future study.

If A Clinical Trial Ends Will I Be Able To Continue Receiving The Study Drug

While most clinical studies provide participants with access to medical products or interventions related to the illness or condition being studied, they do not provide extended or complete health care. Usually when a study ends, the drug or product that is being tested will not be available to participants until it has gone through additional testing and approval.

In some cases, study participants can stay on the study drug through an approach called an open label extension. In this type of study, participants who were part of a randomized controlled trial are invited to continue taking the drug after the initial study ends. This option varies from study to study, so you would need to discuss it with the researchers in charge of the study.

After the clinical trial, there may be a waiting period before you can participate in another trial. One reason for this waiting period is to be sure that the original experimental drug is out of your system and would not influence the results of the next study.

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