Weekly Peer To Peer Support Groups:
- Mondays 10:00 AM ACST co-hosts Eileen Taylor & Kate Swaffer, AU/NZ/SG
- Mondays 9:00 AM GMT co-hosts James McKillop & Dennis Frost,;UK/EU/SA/AU
- Wednesdays 1:30 PM ACST co-hosts Bobby Redman and Kate Swaffer ,;AU/NZ/SG
- Thursdays 1:00 PM CDT co-hosts John Sandblom & Wally Cox, USA/CA
- Thursdays 3:00 PM CDT co-hosts Kate Swaffer, Sid Yidowitch, USA/CA/AU
- Fridays 2pm ACST co hosts Kate Swaffer and Eileen Taylor, AU/NZ/SG
- Fridays 2:30 PM CDT co-hosts Christine Thelker & William Corrigan, USA/CA
Lean On People Close To You
Alzheimers disease impacts the entire familyboth immediate and extended members, says Monica Moreno, senior director of care and support for the Alzheimers Association in Chicago. The same goes for other forms of dementia. Its important for people living with the disease and their family caregivers to establish a strong, reliable care team composed of family members, friends, neighbors, medical professionals, and community members that they can turn to for support throughout the course of the disease.
Treatment As Dementia Gets Worse
The goal of ongoing treatment for dementia is to keep the person safely at home for as long as possible and to provide support and guidance to the caregivers.
Routine follow-up visits to a health professional are necessary to monitor medicines and the person’s level of functioning.
Eventually, the family may have to consider whether to place the person in a care facility that has a dementia unit.
Taking care of a person with dementia is stressful. If you are a caregiver, seek support from family members or friends. Take care of your own health by getting breaks from caregiving. Counselling, a support group, and adult day care or respite care can help you through stressful times and bouts of burnout.
Recommended Reading: What Is The Difference Between Dementia And Senility
Support Groups At The Ucsf Memory And Aging Center
Dementia Family Caregiving Group: Living with Dementia
The Dementia Family Caregiving Group provides a safe environment for families and friends of persons diagnosed with dementia to share their experiences and receive support from others coping with dementia. This group is co-sponsored by the Alzheimers Association and UCSF Memory and Aging Center. There is no charge; however, pre-registration with the Alzheimers Association is required.
For more information, please contact;Melanie Stephens, PhD, at or 415.476.2907.
Alzheimers Support Groups For Caregivers
Last year, 16.3 million relatives and friends offered 18.5 billion hours of unpaid care to a loved one with Alzheimers or another type of dementia, an economic value of $234 billion, according to a report by the Alzheimers Association. Caregiving can be stressful. As Miki Klocke, who cared for her mother with Alzheimers, writes, The reality of a caregivers situation is not talked about enough. During my 17 years as Moms caregiver, I was often told to take care of yourself first. This advice seemed like a cruel joke, and I still dislike how the term self-care is currently defined. While those outside of this experience may believe this advice sounds comforting, its also hard to implement. Caregivers may benefit from speaking to other caregivers who can relate to what they are going through and share practical advice.
Caregiver & Dementia Support Groups Beyond Uc San Francisco
If there is not a disease-specific support group in your area, you can try some of these groups that focus on dementia or caregivers. You can also check with a social worker at your hospital, adult daycare centers, your local Alzheimers Association chapter or community organizations for recommendations. You can find help and good ideas from people dealing with similar issues.
- The Alzheimers Association is a voluntary health organization supporting caregivers and people living with Alzheimers disease and related dementias.;It is also a private, nonprofit funder of Alzheimers and related dementias research. Explore the Northern California and Northern Nevada chapter.
- The ARCH National Respite Network includes a search function to help caregivers and professionals locate respite services in their community and advocacy for respite in policy and programs at the national, state and local levels.
- Caregiver Action Network provides education, peer support and resources to family caregivers across the country free of charge.
- CaringBridge provides free websites that connect people experiencing a significant health challenge to family and friends.
- CJD Support Network provides emotional and practical support for all strains of CJD and for those who are at greater risk of CJD.
Virtual Family Support Groups
3 Different Times Weekly
At times like this, caregivers for those living with Alzheimer’s disease and other dementias can feel especially isolated and alone.;
These groups will “meet” weekly with an Alzheimer’s Tennessee staff member as the host.; Support partners who are family and friends are invited to join online or by phone.
For many individuals with Alzheimer’s and their care partners, support groups provide significant comfort and practical help in coping with the disease. Oftentimes, these “gatherings” serve as important sources of information as well as outlets for feelings and frustrations.;
Monday 1PM CST / 2PM EST Join via Zoom Meeting: ;
Or Join by Phone & follow prompts: 1 205-6099 Meeting ID: 82273111640
Contact or at 865.544.6288 with questions.
Monday 6PM CST / 7PM ESTJoin via Zoom Meeting:;
Or join by Phone & follow prompts: 1 205-6099 Meeting ID:;955 8075 7887;
Contact or 615.580.4244 for details.
Friday 9AM CST/ 10AM ESTJoin via Zoom Meeting:;
Or Join by Phone & follow prompts: 1 205-6099 Meeting ID:;968 8802 5657
Contact or 423.232.8993 for details.
;Supported in part by Vanderbilt University Medical Center Geriatric Workforce Enhancement Program, HRSA Grant 1-U1Q-HP 033085-01-00;
You May Like: When A Loved One Has Dementia
Discover How Our Dementia Care Team Can Help You
Being an in-home caregiver can be mentally, physically, and emotionally draining under any circumstances. In some instances, the person being cared for may have not only Alzheimers or dementia, but another illness such as Parkinsons disease that requires additional care.
No matter what the patients needs are, caregivers need care too.
Research has shown that caregivers themselves are often at increased risk for depression and illness, state the United States National Institutes of Healths National Institute on Agings Caregiver Guide. Especially if they do not receive adequate support from family, friends, and the community.
They also point out that each person with Alzheimers is unique and changes over the course of the disease, and there is no one-size-fits-all remedy for every caregiver for the duration of the illness.
Caregivers need to be on the lookout for signs of their own stress and seek out support.
You are not failing as a caregiver by asking others for assistance, it states on the Alzheimers Associations website.
If friends and family cannot provide the needed caregiver support, find a local support group throughwww.alz.org or the National Family Caregivers Association.
Contact Homewatch CareGivers® for more information about our support groups.
Benefits Of A Caregiver Support Group
Benefits of joining caregiver support groups include:
- Forming friendships,;which can reduce feelings of loneliness, isolation,;anxiety, or distress
- Getting advice from other caregivers;regarding practical solutions, treatment options, and what to expect in the future; caregivers can also;share their tips;;and improve or learn new healthy coping skills
- Gaining a sense of empowerment and control
- Giving a better quality of life to your senior loved one
Alzheimers And Dementia Caregivers Support Chat Group
With nearly 10,000 members, this Facebook group is run by Jean OConnor, who cared for her father with Alzheimers until he passed away recently. While caring for my dad, I realized I was spending a lot of time doing research and making sure everything was done that needed to be done for him. After reading members questions in my group, I now realize that a lot of the information I learned may be helpful to someone else too, she writes.
Members post questions about topics like hospice care, interacting with doctors or nurses, medication or coping with feelings of guilt. They also share photos of their loved ones and posts asking for support when a sick loved one is in the hospital. The admins emphasize that although they run a support group, it is also a chat group where caregivers are welcome to discuss topics that do not solely focus on Alzheimers and are encouraged to acknowledge that sometimes, humor is a great medication for a caregiver.
Brain Health Support Group
- Mondays /Tuesdays , based on the 2nd and 4th Mondays of every month, co hosted by Maria Turner and one of our volunteers, Tamara Claunch
See some of our support group co-hosts in this photo gallery:
If you wish to use these guidelines in your own organisation, please contact us at regarding copyright and referencing.
Please note: you need to save the flyer above as a PDF for the links in it to become active.
Recommended Reading: How To Get Tested For Alzheimer’s Gene
Church Of The Good Shepherd Pyrford
Based in Pyrford, near Woking, the Church of the Good Shepherd is a welcoming Anglican church. The church runs a dementia-friendly service at 2.30pm on the 4th Thursday of every month. The service is 30 minutes long and consists of well loved hymns, familiar readings and prayed, followed by tea and cake. The service is a good opportunity for those living with dementia, and their families/carers, to chat with old friends or meet new ones. Transport can also be arranged; please contact the church office below for more details.
Address: Church Of The Good Shepherd, Pyrford, Woking, GU22 8SPTelephone: 01932 346345Visit Website
What Does An Admiral Nurse Do
Admiral Nurses are specialist dementia nurses. They help families manage complex needs considering the person with dementia and the people around them and they can also advise other healthcare professionals. When friends and family are worried about a loved one, they give them the confidence to manage their future with dementia.
Admiral Nurses work in local community services, GP practices and NHS hospitals, and in Admiral Nurse clinics.
You can also book a phone or video appointment with an Admiral Nurse at a time that suits you by visiting dementiauk.org/get-support/closer-to-home/.
Recommended Reading: Is Weight Loss A Symptom Of Dementia
Veteran Caregiver Support Group
This special caregiver support group will focus on self care of the caregiver, accessing resources for veterans when needed and creating space for sharing in a safe and supportive environment.
Third Tuesday of Every Month from 10:00 11:30 a.m. ET
For more information and to register, please email . The Zoom link and passcode will be provided upon registration.
Caregiver Support Groups: Dementia
The role of a caregiver is often a complex one. Caregivers may find support in speaking with others in a similar role. Support groups for caregivers who are caring for someone living with dementia are listed by county.
Before joining a support group for the first time, we recommend that you reach out to the facilitator or location to check if any details have changed, or to be notified if an emergency arises. Additionally, some facilitators like to learn about new members ahead of your first meeting to prepare a welcome packet or notify the group of a new member, and in general to learn more about your caregiving role and journey.
If you are unable to find what you are looking for, please contact UPMC Senior Services at 866-430-8742 or . We will do our best to check for a support group that will meet your needs and is located close-by.
Don’t Miss: How To Definitively Diagnose Alzheimer’s Disease
Online Family Caregiver Support Groups
Caregiving questions of all sorts are quickly answered on this active forum, or message board, from A Place for Moms partner site, AgingCare. Users can select from three separate tabs: Recent Activity, Most Popular, and Needs Answers. Anyone can read the Q&As though you must;;to post your own questions or answers.
FCAs online caregiver support group focuses on family caregivers for patients with both physical and cognitive disorders like Alzheimers, stroke, Parkinsons, and brain injuries. This FCA group offers a safe place to discuss the stresses, challenges, and rewards of providing care for a loved one.
Caregivers Connect allows the voices of family caregivers to be heard. This support group aims to inspire caregivers and provide helpful resources to better care for senior loved ones. It welcomes new people and encourages members to invite anyone who may benefit from these discussions.
Alzheimers Support Groups For People Living With Alzheimers
Powered by the Alzheimers Association, AlzConnected is a free online community. As the name suggests, the group offers a place for people living with Alzheimers to connect, share stories, and support one another. The site features an active message board where people can get and give advice.
This message board offers thousands of posts on a variety of topics, including I Have Alzheimers or Another Dementia, What Would You Tell Your Future Care Partner? Alzheimers Under Age 65, and many more. There is also a section for discussion in Spanish, as well as a forum to explore questions, issues, and concerns about FDA-approved treatments for Alzheimers disease.
Memory People was founded in 2010 by Rick Phelps after he was diagnosed with early-onset Alzheimers at the age of 57. The group was created to provide assistance, information, support, and encouragement. Its a great place for people to hear the stories of others, and share their own. The page is also home to a collection of videos hosted by Rick. From stigma in dementia to caregiver guilt, his videos explore a range of topics.
Much more than simply a place to gather information, Memory People has grown into a community.
CONNECT WITH A SPECIALIST
You can also join an e-mail network, where you can connect with other family caregivers to ask questions and freely talk about your challenges in a safe place.
You May Like: How Does Alzheimer’s Affect Family And Friends
Best For Activities: Memory Cafe
The idea of a Memory Cafe began in 1997 in the Netherlands when a Dutch psychiatrist wanted to help shatter the stigma associated with dementia.;But as the idea spread throughout Europe and the rest of the world, it evolved into a place where people with memory problems of all sorts could be addressed.
One common memory problem associated with Alzheimers disease is called mild cognitive impairment , which involves memory problems that are not yet so severe that they interfere with daily life.;It is a stage of cognitive decline that is worse than normal aging, but not yet as severe as Alzheimers dementia.
Each Memory Cafe has a different focus and format.;Some aim to provide education, while others are activity-based, offering group activities such as music, dance, and art.;There are even communities that offer guided forums for brain exercises that help improve memory by encouraging reminiscence. In addition, Memory Cafes provide a place for mutual support and social interaction.
Not only do people with dementia or MCI benefit from Memory Cafes, but caregivers can participate in the activities as well. Its a great way to socialize, find enjoyment, and add group interaction into a routine.
Memory Cafes can be offered as an online group activity or as in-person meetings that often add some perks like potlucks or art projects.;Check the website for the various meeting offerings.
Best Caregiver Support Groups Online And In
If youre responsible for caring for an elderly loved one, caregiver support groups are a way for you and other;caregivers;to share your experiences, which can include information, insight, advice, or words of encouragement. Whether youre an;in-home caregiver, caring for someone with Alzheimers or another form of;dementia, or have a family member in an;assisted living community, each person in a caregiver support group can learn from others who face similar challenges
Read Also: How Does Dementia Affect The Brain
Employment And Support Allowance And Universal Credit
What is it?
ESA is a UK government benefit paid to people whose illness or disability affects their ability to work. It is being replaced by a benefit called Universal Credit.
Am I eligible?
- not in receipt of Statutory Sick Pay or Statutory Maternity Pay
- not in receipt of Jobseekers Allowance
You might be transferred from Incapacity Benefit to ESA and wont be expected to return to work.
How much is it?
Youll get a pre-assessment rate of between £58.90 and £74.35 when you first claim. Then, after 13 weeks, you can receive up to £113.55 a week.
How do I claim?
Find out more at gov.uk/employment-support-allowance
ESA is being replaced by a benefit called Universal Credit. Universal Credit is being introduced in stages throughout the UK. To find out if you are eligible to claim Universal Credit or ESA, please visit gov.uk/universal-credit
More Alzheimers Tennessee Caregiver Support Groups Meeting Virtually
Alzheimers Tennessee meeting virtually, the 3rd;Monday of the month at 5:30pm. No meetings in December or January. Contact Alzheimers Tennessee at 544-6288 for more information
Memory Café meeting virtually Tuesdays and Thursdays every week at 10am.;For persons WITH a Diagnosis of Mild Cognitive Impairment, Early Stage Alzheimer’s, FTD, Vascular Dementia or Lewy Body Dementia.;More details here.
St. Johns Lutheran Church meeting virtually, the 2nd Monday of the month at 1pm. Contact support group facilitator Monica Krogmann at for more information.
Fountain City Presbyterian Church meeting virtually, the 1st Monday of the month at noon. Contact support group facilitator Kathy Castenir for more information.
*There are no other virtual caregiver support group meetings in the other Tennessee regions at this time.
Read Also: What Is The 7th Stage Of Alzheimer’s