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HomeCareHelp For Caregivers Of Dementia Patients

Help For Caregivers Of Dementia Patients

Are Dementia Symptoms Reversible

Dementia specialist uses unique approach to help caregivers understand patients

A cure does not currently exist for certain dementias, like Alzheimers disease. However, some medical conditions, like thyroid problems, vitamin deficiencies, depression and medication interactions, can cause reversible dementias. When treated early, seniors thinking and memory problems may be improved.

Cope With Changes In Communication

As your loved ones Alzheimers or dementia progresses, youll notice changes in how they communicate. They may have trouble finding words, substitute one word for another, repeat the same things over and over, or become easily confused. Increased hand gestures, losing their train of thought, and even inappropriate outbursts are all common as well.

Even if your loved one has trouble maintaining a conversationor less interest in starting oneits important to encourage social interaction. Making them feel safe rather than stressed will make communication easier, so try to manage your own frustration levels.

Be patient. If your loved one has difficulty recalling a word, for example, allow them time. Getting anxious or impatient will only inhibit their recall. Gently supply the word or tell the person that you can come back to it later.

Be aware of your body language. Your loved one responds to your facial expression, tone of voice, and nonverbal cues as much as the words you choose. Make eye contact, stay calm, and keep a relaxed, open posture.

Speak slowly and clearly. Give one direction or ask one question at a time, use short sentences, and give your loved one more time to process whats being said. Find a simpler way to say the same thing if it wasnt understood the first time.

Maintain respect. Dont use patronizing language, baby talk, or sarcasm. It can cause hurt or confusion.

The Best Free Resources For Dementia Caregivers

As a dementia caregiver you might feel lost and alone or like no one understands what youre going through. There are several types of dementia and the disease progresses differently for everyone. You may be facing a roller-coaster of emotions, ranging from despair and anxiety to anger and frustration, all while trying to balance the demands of caregiving with other responsibilities, such as your family or career.

Fortunately, there are many excellent resources for dementia caregivers many of them completely free of charge. Heres a look at 10 of the best free resources for caregivers providing dementia care.

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Resources For Caregivers Of People With Alzheimers Disease And Related Dementias

When a family member or loved one has Alzheimers disease or a related dementia, you may find yourself left with more questions than answers. These diseases change the way a person thinks and acts, and can be very challenging, especially for those in a caretaking role. Learning more about these diseases, what to expect, and what you can do can make a difference in a caregivers health and well-being and the well-being of the person youre caring for.

The federal government offers reliable resources on Alzheimers disease and related dementias and can connect you to important information about care and support. You can use the pages on this website and resources below to find more information from government sources. The information provided on these websites has been reviewed by experts in their fields. Health care providers, case managers, social workers, and nonprofit organizations may also be helpful.

What Qualifications Do You Need To Work With Dementia Patients

Helping Dementia Patients, Caregivers Live Their Best Lives  Psych ...

It is necessary for a specialist dementia nurse to receive additional training after receiving registration. Also, the nurse should be familiar with the latest research pertaining to dementia care with no less than two years experience. Competency holders generally hold a recognized mental health nursing qualification for providing specialist dementia care.

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Help For Alzheimers Caregivers

Beyond the vital roles of number-crunching, budgeting and finding ways to conserve money, caregivers can get inundated with information. Seemingly, they must become experts in all areas of a patients life. It can be overwhelming. But some areas warrant careful education and consistent attention.

Stages of Dementia Caregivers should become educated in the stages of dementia. The early stages can be tricky because the patient will likely continue normal activities. Alzheimers symptoms usually develop slowly and get worse over time, becoming severe enough to interfere with daily tasks. In the middle stages, patients may experience depression, anxiety, irritability and repetitive behaviors, leading to sleep changes, physical and verbal outbursts and wandering. Patients might lose their ability to find words, express thoughts and follow conversations. In the late stages, around-the-clock care is usually required. The patient has difficulty eating and swallowing. Assistance is needed with walking and personal care.

Daily Care Plans It helps to develop a daily pattern of activities so the patient can live well for as long as possible. Patients want to remain healthy, active, engaged and independent. If some situations become too stressful for the patient, eliminate them and work together to find more relaxing activities. The role of caregiver doesnt come with an instruction manual, so its helpful to learn all you can about symptoms, treatment and behavior management.

Caregiving In The Late Stages Of Alzheimers Or Dementia

As Alzheimers or another dementia reaches the late stages, your loved one will likely require 24-hour care. They may be unable to walk or handle any personal care, have difficulty eating, be vulnerable to infections, and no longer able to express their needs. Problems with incontinence, mood, hallucinations, and delirium are also very common.

In your role as caregiver, youll likely be combining these new challenges with managing painful feelings of grief and loss and making difficult end-of-life decisions. You may even be experiencing relief that your loved ones long struggle is drawing to an end, or guilt that youve somehow failed as a caregiver. As at the other stages of your caregiving journey, its important to give yourself time to adjust, grieve your losses, and gain acceptance.

Since the caregiving demands are so extensive in the later stages, it may no longer be possible for you to provide the necessary care for your loved one alone. If the patient needs total support for routine activities such as bathing, dressing, or turning, you may not be strong enough to handle them on your own. Or you may feel that youre unable to ease their pain or make them as comfortable youd like. In such cases, you may want to consider moving them to a care facility such as a nursing home, where they can receive high levels of both custodial and medical care.

Connecting in the late stages of care

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A Clinical Nurse Educator And A Dietician With Chapters Health System Share Valuable Advice For Families Who Care For A Dementia Patient

Caring for a dementia patient is not easy. Dementia describes a range of neurological conditions affecting the brain and worsens over time. Changes in the brain cause nerve cells to stop working properly and eventually die. As a result, patients lose the ability to remember and think at levels required for daily life. Researchers have linked the changes in the brain to certain forms of dementia, but in most cases the changes causing dementia are unknown.

When caring for a dementia patient, it is important to know the different types of dementia. Alzheimers disease is the most common form. According to the Alzheimers Association, around 6.5 million Americans over the age of 65 live with the disease today. This number could increase to 13.8 million in 2060 if no medical breakthroughs are made. Like many forms of dementia, the condition is typically associated with buildups of specific proteins in the brain and a loss of connection among nerve cells.

Core Principles For Health And Care Professionals

Helping dementia patients and their caregivers navigate the disease

Health and care professionals should:

  • think prevention first
  • know the needs of individuals, communities and population and the services available
  • think about the resources available in health and wellbeing systems
  • understand specific activities that can protect and promote health and wellbeing
  • consider their own internal policies and procedures that support health at work

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Psych Yourself Up To Be A Dementia Caregiver

In a randomized trial of 119 caregivers, Johns Hopkins MIND at Home researchers found the most upbeat and positive dementia caregivers tended not to hesitate on interventions. Instead, they jumped right in with environmental modifications, communication techniques and other needed interventions. Four months later, the caregivers were fully engaged and seeing positive changes in their loved ones behavior.

Dementia & Alzheimer’s Disease Caregivers

Providing care for a patient or a loved one with Alzheimer’s disease or another form of dementia can be especially challenging, as these diseases affect memory, behavior, judgement, thinking, and the ability to take care of yourself. You’ll need to learn about AD and other dementias so that you’ll know how best to provide care throughout each stage of the disease, adapt how you provide care and support as the disease progresses, and learn when to reach out for advanced help when needed.

The stresses of caregiving can be overwhelming at times, but you are not alone in your caregiving journey. There are many local and national resources available to you that provide education, support, reassurance, and advice.

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Ask Very Simple Questions

Any questions you ask should be easy to understand and answer. Instead of saying, Hi Richard, We were wondering if you might want to take a walk before going to eat your lunch this afternoon? try Richard, can we go for a walk? or Richard, its time to eat. Always address them with their name and allow them a moment to process and react or answer the question. You dont want to overwhelm them with long-winded questions or by asking too many at once.

A great way to continue to promote independence and self-autonomy even as dementia progresses is to offer simple choices. For example, Julio, would you prefer to wear your green shirt or blue shirt today? When you give simple choices, you offer a supportive environment that allows your loved ones with dementia to still have some control over their life.

Dealing With Direct Symptoms Of Dementia

Senior Care Graphics

Dementia and other medical conditions such as strokes, Parkinsons disease, and head trauma can cause neurological problems that come with specific symptoms such as incontinence and perseveration . These symptoms are often directly correlated to patients with dementia and knowing how to handle them properly is key to managing the disease.

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Get Paid As A Caregiver For A Family Member

A caregiver helps a person with special medical needs in performing daily activities. Tasks include shopping for food and cooking, cleaning the house, and giving medicine. Many government programs allow family members of veterans and people with disabilities to get paid for caring for them.

  • The Medicaid Self-Directed Care program lets qualified people manage their own health services. It also lets them hire family members as caregivers in some states.
  • The Veteran-Directed Home and Community Based Services program offers veterans a flexible budget. This allows them to choose goods and services they find most useful, including hiring a family member or neighbor as a personal care aide.
  • Aid and Attendance benefits for veterans work in conjunction with a VA pension. These benefits help cover the costs of a caregiver, who may be a family member. Contact the VA pension management center in your area for rules and conditions.
  • Long-Term Care Insurance allows family members to be paid as caregivers. But some policies wont pay family members who live with the person theyre caring for. Contact your family member’s insurance agent for more information. You can also ask the agent for a written confirmation of benefits.

Universal Rules To De

  • Try not to personalize the behavior but recognize the dementia is causing the changes in your loved one
  • For any sudden or escalation in behaviors, seek medical advice to ensure there is no underlying medical condition or pain attributing to the behavior
  • Reassure and agree instead of reasoning and arguing
  • Dissect the behavior to help give you a better understanding of possible triggers
  • Remain as calm and patient as you can

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Assessing Home Safety For Dementia Patients

Home safety for dementia patients can help address concerns brought on by the mental and physical changes that pose a detriment to your loved ones health and safety, such as:

  • Judgment, such as forgetting how to use everyday objects and appliances.
  • Sense of time and place, including getting lost in their neighborhood.
  • Behavior, such as confusion, fear, or suspicion.
  • Physical capabilities, such as balance problems.
  • Sensory changes such as vision, hearing, depth perception, etc.

So before you go through your loved ones home, consider their health, abilities, and behaviors. For example, do they struggle to use stairs? Do they wander or move about the house at night? Do they have a history of falling?

Once you consider these questions, examine each room for possible risks and record any home modifications you think would be beneficial. Remember that your loved ones surroundings are easier to modify than their behavior. As your loved ones condition progresses, you must regularly reassess their capabilities.

Us Department Of Veterans Affairs Dementia Care

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For dementia caregivers providing care for a veteran, the U.S. Department of Veterans Affairs offers helpful information on Alzheimers disease and other dementias, as well as information on the services and resources available to veterans living with dementia. Services provided include support for both veterans and their caregivers.

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Holistic Dementia Care Community In Portland Or

Our residents receive only the highest-quality care, which is personalized to them through Opal our innovative memory care approach at Russellville. Opal was designed to support residents in living with purpose, through treatment of both the body and mind. This holistic treatment is informed by our seven pillars of care and based on Teepa Snows GEM Levels and Positive Approach to Care.

Sensory

We know that individuals living with a diagnosis of dementia often experience and express themselves through the five senses. The Opal program provides daily opportunities for our residents to positively interact in our community through what they see, hear, touch, taste, and smell.

Become A Paid Caregiver Yourself

There are two public healthcare programs that cover U.S. citizens and some non-citizens. Medicare is open to people over age 65. Medicaid is open to low-income people of all ages.

Medicaid has a program that lets family become paid caregivers for a relative with dementia. The program is calledMedicaid Home and Community Based Services Waivers . It gives your loved one with Alzheimers a budget, or allowance, for paid care. The caregiving family member is then paid from the allowance. States administer HCBS Waivers, socontact your states Medicaid office for more information.

Its important to note that Medicaid has strict income and wealth requirements. It only covers healthcare if you have less than $2,000 in assets like savings, stocks, and bonds. Here is a full breakdown ofMedicaid eligibility if you think your loved one may be covered.

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Equip Your Home With Assistive Devices

Simple fixes, such as grab bars in the bathroom, carpets tacked down to prevent falls, and locked gun closets, guard against accidents that drive people into nursing homes. In one study, Johns Hopkins researchers found that more than 90% of patient needs in those with dementia were safety-related. Another Johns Hopkins MIND at Home study of 88 patients and their caregivers found that the more safety or navigation supports a person with dementia had, the higher they rated their own quality of life.

How Do You Spend Time With Someone With Dementia

Dementia Care

People living with dementia might have difficulty planning their day as their ability to structure time begins to falter. Activities planned by caretakers or family members can be good to ease this sense of discomfort. Planning activities at a consistent time every day helps mimic the familiarity of an old routine.

As a person living with dementia spends time with new activities, their loved ones and caregivers can assess if they are capable and content to do activities alone, or if they need help and supervision.

Get started with these ideas, and then think of the individual in your life to imagine more activities for their well-being.

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Your Trusted Advisors In Senior Living

Making the decision to move into senior living begins with many questions and uncertainty. From the decision to move, to knowing its time, the journey is fraught with important, emotional decisions. We are living in an unprecedented time where the future seems uncertain, and our way of life is changing fast. Now, more than ever, you need senior living you can trust.

Leisure Care has nearly 50 years of experience providing exceptional senior living, thats why weve put together these extensive resources to help you navigate the best option for you or your loved one. For more specific questions about our enhanced protocols visit our communications page or connect with a trusted advisor by contacting the community nearest you.

FIND SENIOR LIVING INFORMATION

Tips For Caregivers: Taking Care Of Yourself

Being a caregiver can be extremely rewarding, but it can also be overwhelming. Caring for a person with Alzheimer’s or a related dementia takes time and effort. It can feel lonely and frustrating. You might even feel angry, which could be a sign you are trying to take on too much. It is important to find time to take care of yourself. Here are some tips that may offer some relief:

  • Ask for help when you need it. This could mean asking family members and friends to help or reaching out to for additional care needs.
  • Eat nutritious foods, which can help keep you healthy and active for longer.
  • Join a caregiver’s support group online or in person. Meeting other caregivers will give you a chance to share stories and ideas and can help keep you from feeling isolated.
  • Take breaks each day. Try making a cup of tea or calling a friend.
  • Spend time with friends and keep up with hobbies.
  • Get exercise as often as you can. Try doing yoga or going for a walk.
  • Try practicing meditation. Research suggests that practicing meditation may reduce blood pressure, anxiety and depression, and insomnia.
  • Consider seeking help from mental health professionals to help you cope with stress and anxiety. Talk with your doctor about finding treatment.

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